Neurocutaneous Syndrome and Tuberous Sclerosis Program

photo of noseWhat is a Neurocutaneous Syndrome?

A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.

What are examples of Neurocutaneous Syndromes?

  • Neurofibromatosis Type 1
  • Neurofibromatosis Type 2
  • Tuberous Sclerosis Complex
  • Von Hippel-Lindau Syndrome
  • Sturge-Weber Syndrome
  • Schwannomatosis
  • Cerebelloretinal Hemangiomatosis
  • Ataxia-telangiectasia

photo of a brain scanWhat body parts are involved in these syndromes?

The brain, spinal cord, skin, liver, kidney, lungs and special sensory organs.

I am patient with a Neurocutaneous Syndrome. Why do I need to go to the Comprehensive Neurocutaneous Program at UFHealth?

These syndromes can be puzzling for non-specialists, and often require collective minds of many physicians before a clinical diagnosis is made. At the UF Comprehensive Neurocutaneous Syndrome program we are available to help you from the beginning and will look after your overall medical needs seamlessly. We will coordinate your care with clinical genetics, general neurology, epileptology, neuro-oncology, nephrology, ophthalmology and pulmonary medicine.

Meet our Multidisciplinary Team

Neurology and Medical Genetics

Hans H Shuhaiber, MD (Director)

Pediatric Genetics

Robert Zori, MD

Neuro-oncology

Sri Gururangan, MD, FRCPEdin

David Tran, MD, PhD

Ashley Ghiaseddin, MD

Epilepsy

Giridhar Kalamangalam, MD, DPhil

Jean Cibula, MD

Maria Hella, MD

Yue Wang, MD, PhD

S. Parrish Winesett, MD

Ophthalmology

Tuli Sonal, MD

Nephrology

Jogiraju Tantravahi, MD, PhD

Pulmonology

Ali Ataya, MD

Neurogenetics

Laura P.W. Ranum, PhD

Inquiries and Contact Information

Please ask for an appointment with Dr Hans Shuhaiber, UF Neurocutaneous Program Director.  at UF Neurology Shands Medical Plaza.
UF Health Neurology – Medical Plaza

APPOINTMENTS: 352-294-5000  FAX: 352-627-4295

ADDRESS:2000 SW Archer Rd, 3rd Floor, Gainesville, FL 32608