May is Huntington’s Disease Awareness Month, dedicated to raising awareness for the rare, inherited neurodegenerative disorder that impacts thousands of families. Throughout the month, organizations like the Huntington’s Disease Society of America (HDSA) promote advocacy, education, and fundraising for research, often featuring campaigns and going blue. At the Fixel Institute, we are dedicated to providing compassionate, comprehensive care while advancing research to better understand the disease. Learn more about our Huntington’s Disease Center of Excellence.
#LetsTalkAboutHD is a social media initiative during Huntington’s Disease Awareness Month to encourage families to share their experiences with HD. You can share a video, a photo or a written story to help raise awareness – HD impacts every family differently and it’s time the world knows our story.
All stories are welcome – research included! Maybe you have a story about participating in HD research, or want to share resources to learn about the amazing things that are happening in the field today. Maybe you’re a researcher who wants to talk about the work you’re doing or the things that inspire you to continue.
Post videos, stories, and photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families. Learn more.