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NF Clinic

Join us for a Virtual Event!

Overview of Neurofibromatosis Type 1 Plexiform Neurofibroma Speaker: Dr. Mislen Bauer Director, Neurofibromatosis Program Clinical Genetics & Metabolism Nicklaus Children’s Hospital, Miami FL Date: June 12, 2020 12:00 – 1:00 pm EDT To register please click here!…

Virtual NF Conference – June 15-16!

Please join us for the upcoming virtual NF conference brought to you by the Children’s Tumor Foundation – June 15-16, 2020! The conference kicks off at 9:45 ET Monday with a welcome from our co-chairs and opening remarks from Dr. Francis Collins of the NIH. The Clinical Care Advisory Board…

Understanding NF2

Use this link to download a copy of NF Hero Comics – Understanding NF2.  This is a resource from the Children’s Tumor Foundation – Ending NF through Research.  …

Upcoming Speakers to Present at UF

Tuesday, March 10, 2020 – 12:00-1:00 pm Frank Rice, PhD, is the CEO and Chief Scientist at Integrated Tissue Dynamics (INTiDYN).  He is an internationally recognized expert of somatosensory biology, peripheral innervation, vascular regulation, tissue histology and novel therapies of pain perception.  He will speak about about his research  “…

Speaker Announcement – Sepideh Mokhtari, MD

Tuesday January 7,  2020 12 pm- 1 pm Invited Neurology Grand Rounds Speaker Sepideh Mokhtari MD   Neuro-oncological Aspects of Neurofibromatosis Location: McKnight Brain Institute, DeWeese Auditorium, LG-101   Dr. Sepideh Mokhtari is an Assistant Member in the Department of Neuro-Oncology at Moffitt Cancer Center. Dr. Mokhtari received her…

Care of adults with neurofibromatosis type 1

Neurofibromatosis type 1 (NF1) is an autosomal dominant tumor-predisposition disorder that arises from loss-of function variants in the tumor-suppressor gene NF11,2. Features of the disorder typically appear in early childhood. Download article now…

Breakthrough News…

New Study reveals treatment pathway for Neurofibromatosis Now, a national team of researchers including  James Wymer, M.D., Ph.D., a UF professor of neurology and director of the neuromuscular division, has identified a novel pathway for potential treatment of this distressing condition, which typically is diagnosed in childhood or early adulthood.