EXCITING NEWS, University of Florida, NF clinic is excited to be the site for NF-2’s first clinical trial in patients suffering from progressive meningiomas seen in NF-2 patients. If you are a patient, you are an adult or adolescent (12 years of age or older) and have a disease…
Purpose of Study The purpose of this study is to test the safety and effectiveness of 2 concentrations of NFX-179 gel compared with placebo gel in reducing the appearance of cutaneous neurofibromas (cNFs) in subjects with Neurofibromatosis Type 1 (NF1). Participant Criteria Ages 18+ Diagnosed with neurofibromatosis…
Volunteers, aged 18 years and older are wanted for a clinical research study using an investigational topical medication. Must have a clinical diagnosis of Neurofibromatosis type 1 Must have 10 Cutaneous Neurobirbomas on your skin All patricipants are seen by Hans Shuhaiber, MD, Neurologist for no cost study related evaluations…
The Masterclasses will take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations will be conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A…
Neurofibromatosis affects millions of people worldwide, but few have heard of it and there currently is no cure. The Shine a Light Walk is a fundraising event to benefit the…
This symposium is generously sponsored by Charles M. Seigel in heartfelt memory of NF2 patient, Paul Bruder (1985-2019). You can read more about Paul Bruder and his love for life here. In partnership with Children’s Tumor Foundation and PIH. Join House Institute Foundation faculty and guest experts as they…
Dr. Phioanh Leia Nghiemphu, an Associate Professor of Clinical Neurology in the Department of Neurology at UCLA, will speak on August 8th at UF Neurology Grand Rounds from 12:00 – 1:00 pm. Dr. Nghiemphu’s research focuses on individualized treatments for patients with primary brain tumors to increase their survival and…
The TSC center at UF Health is delighted to have Dr. Michael Wong MD Ph.D. – Director of TSC center at Washington University St. Louis,. as an invited speaker to Neurology grand rounds on July 27th, 2021. 12-1 pm EST Michael Wong, MD, PhD …
Gain expert insights for incorporating MEK inhibitors as a part of treatment plans for managing patients with NF1-related plexiform neurofibromas, optic pathway gliomas, and other tumors. Meet Your Presenters Co-Chair & Presenter Bruce R. Korf, MD, PhD UAB School of Medicine University of Alabama at…
Neurology Grand Rounds Guest Speaker Matthias A. Karajannis, MD, MS Pediatric Neuro-Oncologist See the video here! Neurofibromatosis Type 2…
