Tuberous Sclerosis and Neurocutaneous Syndrome
A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.
What are examples of Neurocutaneous Syndromes?
- Neurofibromatosis Type 1
- Neurofibromatosis Type 2
- Tuberous Sclerosis Complex
- Von Hippel-Lindau Syndrome
- Sturge-Weber Syndrome
- Cerebelloretinal Hemangiomatosis
The brain, spinal cord, skin, liver, kidney, lungs and special sensory organs.
I am patient with a Neurocutaneous Syndrome. Why do I need to go to the Comprehensive Neurocutaneous Program at UFHealth?
These syndromes can be puzzling for non-specialists, and often require collective minds of many physicians before a clinical diagnosis is made. At the UF Comprehensive Neurocutaneous Syndrome program we are available to help you from the beginning and will look after your overall medical needs seamlessly. We will coordinate your care with clinical genetics, general neurology, epileptology, neuro-oncology, nephrology, ophthalmology and pulmonary medicine.
Meet our Multidisciplinary Team
Neurology and Medical Genetics
Hans H Shuhaiber, MD (Director)
Robert Zori, MD
Sri Gururangan, MD, FRCPEdin
David Tran, MD, PhD
Ashley Ghiaseddin, MD
Giridhar Kalamangalam, MD, DPhil
Jean Cibula, MD
Maria Hella, MD
Yue Wang, MD, PhD
S. Parrish Winesett, MD
Tuli Sonal, MD
Jogiraju Tantravahi, MD, PhD
Ali Ataya, MD
Laura P.W. Ranum, PhD
Inquiries and Contact Information
Please ask for an appointment with Dr Hans Shuhaiber, UF Neurocutaneous Program Director. at UF Neurology Shands Medical Plaza.
UF Health Neurology – Medical Plaza
APPOINTMENTS: 352-294-5000 FAX: 352-627-4295
ADDRESS:2000 SW Archer Rd, 3rd Floor, Gainesville, FL 32608