WHAT IS TUBEROUS SCLEROSIS COMPLEX? TSC
Tuberous sclerosis complex (TSC) is a genetic disorder that causes non-malignant tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. However, many people with TSC are living independent, healthy lives and enjoying challenging professions such as doctors, lawyers, educators and researchers. The incidence and severity of the various aspects of TSC vary widely between individuals—even between identical twins. Seizures remain one of the most common neurological features of TSC, occurring in 85% of individuals with TSC; therefore, the early diagnosis and treatment of these seizures are critically important.
UF Health is Part of the TSC Alliance Clinic Consortium
Our Mission
The UF Health Tuberous Sclerosis Center team sees pediatric and adult patients at the Tuberous Sclerosis Clinic at UF Health Medical Plaza and Neuro Medicine Hospital . This is one of few clinics in the State of Florida dedicated specifically to the care of individuals with tuberous sclerosis complex (TSC). The mission of the Tuberous Sclerosis Clinic is to provide multidisciplinary, comprehensive care of children and adults with TSC and to promote education and awareness about the disease. Because TSC often affects multiple organs throughout the body, the clinic incorporates a multidisciplinary approach involving physicians, nurses, therapists, and other staff members from different UF Health specialty divisions, including cardiology, dermatology, genetics, nephrology, neuropsychology, neurosurgery, ophthalmology, psychiatry, and urology.
Our Clinics
Pediatrics TSC Clinic
Children are seen primarily at the TSC Clinic at 1549 Gale Lemerand Drive, Second Floor, Gainesville, FL and affiliated pediatric subspecialty clinics at UF Health Children’s Hospital.
Adult TSC Clinic
The adult TSC Clinic site is located at the UF Health NeuroMedicine Hospital at 1505 SW Archer Road, Ground Floor, Gainesville, FL 32608.
Meet our Team
Hans H Shuhaiber M.D.
Pediatric and Adult Specialty Service Providers
Meet the Team
Meet our Pediatric and Adult Care Providers
LAM is a rare cystic lung disease that almost always affects young females. It may occur for no reason (sporadic) or be associated with the disease Tuberous Sclerosis Complex (TSC). The University of Florida also has a dedicated (LAM) lymphangioleiomyomatosis clinic, accredited by the LAM Foundation, that focuses on the evaluation and management of patients with sporadic LAM and TSC-LAM. The clinic was established and run by Dr Ali Ataya of UF Pulmonary Medicine.
