The Neurofibromatosis Center at UF  is now a member of NFCN network.

Map of Neuromedicine Hospital

To Download our Brochure Click here!

Get Information on the ReNeu NF1 Plexiform Neurofibroma Clinical Trial

About Neurofibromatosis

Mission of the Neurofibromatosis Center

Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.

NF Brain scan

What is a Neurocutaneous Syndrome?

A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.

nf brain scan 2

UF Health Now Offering Specialized Treatment for Children and Adults with Neurofibromatosis

UF Health physicians have extensive expertise in managing and treating these complex NF disorders and are able to provide the most advanced care to patients. NF-related disorders may affect the nerves, spinal cord, brain, skin and other systems throughout the body.

photo from brochure 2 children

About US

Pediatric Care Team

Contact: Sridharan Gururangan, FRCP, Edin.

Pediatric Hospital Main

Neurofibromatosis News and ANNOUNCEMENTS

Neurofibromatosis Type 2: Genetics, Biology and…

Neurology Grand Rounds Guest Speaker Matthias A. Karajannis, MD, MS Pediatric Neuro-Oncologist See the video here! Neurofibromatosis…

Cell phone playing Youtube

Save the Date for Grand Rounds Guest Speaker…

Save the Date! Neurology Grand Rounds Guest Speaker Matthias A. Karajannis, MD, MS Pediatric Neuro-Oncologist May 11, 2021 12pm …

Matthias Karajannis

Advances in Neurofibromatosis: Integrating…

Live Virtual CME Experience Friday, October 9, 2020 (8:45 am-4:15 pm) This live virtual conference is intended to…

NF Flyer

Informative Videos

What is Neurofibromatosis?

Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.

Image from Video

Guidelines for NF1 Patients

Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.

Image from video of Dr. Yohay

Helpful Links

Children’s Tumor Foundation

Neurofibromatosis Consortium