About Neurofibromatosis
Center for Excellence in Care in Neurofibromatosis at UF HEALTH
The Center for Excellence in Care in Neurofibromatosis at UF HEALTH provides comprehensive and exceptional care for patients and families affected with NF. We are designated clinic as a member of the NFCN ( Neurofibromatosis Clinical network). We are also members of the NF Foundation and Network.
Mission of the Neurofibromatosis Center
Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.
What is a Neurocutaneous Syndrome?
A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.
About US
Adult Care Team
Contact: Hans Shuhaiber, MD
Pediatric Care Team
Contact: Sridharan Gururangan, FRCP, Edin.
neurofibromatosis Clinical Trials
Neurofibromatosis Clinical Trials at UF
The Neurofibromatosis Center at UF is now a member of NFCN network.
To Download our Brochure Click here!
Get Information on the ReNeu NF1 Plexiform Neurofibroma Clinical Trial
Neurofibromatosis News and ANNOUNCEMENTS
Save the Date!
Dr. Phioanh Leia Nghiemphu, an Associate Professor of Clinical Neurology in the Department of Neurology at UCLA, will speak on August 8th at UF…
Michael Wong, MD, PhD, to speak at Grand Rounds
The TSC center at UF Health is delighted to have Dr. Michael Wong MD Ph.D. – Director of TSC center at Washington University St. Louis,. as an…
Translating Science to Transform Clinical…
Gain expert insights for incorporating MEK inhibitors as a part of treatment plans for managing patients with NF1-related plexiform neurofibromas…
Informative Videos
What is Neurofibromatosis?
Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.
Guidelines for NF1 Patients
Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.
CCAB Virtual Case Conference
The Children’s Tumor Foundation Clinical Care Advisory Board Virtual Case Conferences.
