About Neurofibromatosis
Mission of the Neurofibromatosis Center
Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.
What is a Neurocutaneous Syndrome?
A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.
UF Health Now Offering Specialized Treatment for Children and Adults with Neurofibromatosis
UF Health physicians have extensive expertise in managing and treating these complex NF disorders and are able to provide the most advanced care to patients. NF-related disorders may affect the nerves, spinal cord, brain, skin and other systems throughout the body.
About US
Adult Care Team
Contact: Hans Shuhaiber, MD
Pediatric Care Team
Contact: Sridharan Gururangan, FRCP, Edin.
Neurofibromatosis News and ANNOUNCEMENTS
Upcoming Speakers to Present at UF
Tuesday, March 10, 2020 – 12:00-1:00 pm Frank Rice, PhD, is the CEO and Chief Scientist at Integrated Tissue Dynamics (INTiDYN). He is an…
Speaker Announcement – Sepideh Mokhtari, MD
Tuesday January 7, 2020 12 pm- 1 pm Invited Neurology Grand Rounds Speaker Sepideh Mokhtari MD Neuro-oncological Aspects of…
Care of adults with neurofibromatosis type 1
Neurofibromatosis type 1 (NF1) is an autosomal dominant tumor-predisposition disorder that arises from loss-of function variants in the…
Breakthrough News…
New Study reveals treatment pathway for Neurofibromatosis Now, a national team of researchers including James Wymer, M.D., Ph.D., a UF professor…
Informative Videos
What is Neurofibromatosis?
Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.
Guidelines for NF1 Patients
Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.
