About Neurofibromatosis

Mission of the Neurofibromatosis Center

Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.

NF Brain scan

What is a Neurocutaneous Syndrome?

A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.

nf brain scan 2

UF Health Now Offering Specialized Treatment for Children and Adults with Neurofibromatosis

UF Health physicians have extensive expertise in managing and treating these complex NF disorders and are able to provide the most advanced care to patients. NF-related disorders may affect the nerves, spinal cord, brain, skin and other systems throughout the body.

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About US

Pediatric Care Team

Contact: Sridharan Gururangan, FRCP, Edin.

Pediatric Hospital Main

Neurofibromatosis News and ANNOUNCEMENTS

Upcoming Speakers to Present at UF

Tuesday, March 10, 2020 – 12:00-1:00 pm Frank Rice, PhD, is the CEO and Chief Scientist at Integrated Tissue Dynamics (INTiDYN).  He is an…


Speaker Announcement – Sepideh Mokhtari, MD

Tuesday January 7,  2020 12 pm- 1 pm Invited Neurology Grand Rounds Speaker Sepideh Mokhtari MD   Neuro-oncological Aspects of…

Sepideh Mokhtari

Care of adults with neurofibromatosis type 1

Neurofibromatosis type 1 (NF1) is an autosomal dominant tumor-predisposition disorder that arises from loss-of function variants in the…

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Breakthrough News…

New Study reveals treatment pathway for Neurofibromatosis Now, a national team of researchers including  James Wymer, M.D., Ph.D., a UF professor…

James Wymer

Informative Videos

What is Neurofibromatosis?

Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.

Image from Video

Guidelines for NF1 Patients

Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.

Image from video of Dr. Yohay

Helpful Links

Children’s Tumor Foundation

Neurofibromatosis Consortium