The Neurofibromatosis Center at UF  is now a member of NFCN network.

Map of Neuromedicine Hospital

About Neurofibromatosis

Mission of the Neurofibromatosis Center

Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.

NF Brain scan

What is a Neurocutaneous Syndrome?

A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.

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UF Health Now Offering Specialized Treatment for Children and Adults with Neurofibromatosis

UF Health physicians have extensive expertise in managing and treating these complex NF disorders and are able to provide the most advanced care to patients. NF-related disorders may affect the nerves, spinal cord, brain, skin and other systems throughout the body.

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About US

Pediatric Care Team

Contact: Sridharan Gururangan, FRCP, Edin.

Pediatric Hospital Main

Neurofibromatosis News and ANNOUNCEMENTS

NF1 in Adults and Genetic Predisposition to…

Xia Wang, MD, PhD Neurofibromatosis Clinic Moffitt Cancer Center 12902 USF Magnolia Drive Tampa, FL  33612   Presentation will be in lecture…

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Join us for a Virtual Event!

Overview of Neurofibromatosis Type 1 Plexiform Neurofibroma Speaker: Dr. Mislen Bauer Director, Neurofibromatosis Program Clinical Genetics…

Speaker with Bull Horn

Virtual NF Conference – June 15-16!

Please join us for the upcoming virtual NF conference brought to you by the Children’s Tumor Foundation – June 15-16, 2020! The conference kicks…

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Informative Videos

What is Neurofibromatosis?

Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.

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Guidelines for NF1 Patients

Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.

Image from video of Dr. Yohay

Helpful Links

Children’s Tumor Foundation

Neurofibromatosis Consortium