The Neurofibromatosis Center at UF is now a member of NFCN network.
To Download our Brochure Click here!
Get Information on the ReNeu NF1 Plexiform Neurofibroma Clinical Trial
About Neurofibromatosis
Mission of the Neurofibromatosis Center
Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.
What is a Neurocutaneous Syndrome?
A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.
UF Health Now Offering Specialized Treatment for Children and Adults with Neurofibromatosis
UF Health physicians have extensive expertise in managing and treating these complex NF disorders and are able to provide the most advanced care to patients. NF-related disorders may affect the nerves, spinal cord, brain, skin and other systems throughout the body.
About US
Adult Care Team
Contact: Hans Shuhaiber, MD
Pediatric Care Team
Contact: Sridharan Gururangan, FRCP, Edin.
Neurofibromatosis News and ANNOUNCEMENTS
Save the Date for Grand Rounds Guest Speaker…
Save the Date! Neurology Grand Rounds Guest Speaker Matthias A. Karajannis, MD, MS Pediatric Neuro-Oncologist May 11, 2021 12pm …
Advances in Neurofibromatosis: Integrating…
Live Virtual CME Experience Friday, October 9, 2020 (8:45 am-4:15 pm) This live virtual conference is intended to…
NF1 in Adults and Genetic Predisposition to…
Xia Wang, MD, PhD Neurofibromatosis Clinic Moffitt Cancer Center 12902 USF Magnolia Drive Tampa, FL 33612 Presentation will be in lecture…
Informative Videos
What is Neurofibromatosis?
Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.
Guidelines for NF1 Patients
Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.
