About Neurofibromatosis

NF xrays

Center for Excellence in Care in Neurofibromatosis at UF HEALTH

The Center for Excellence in Care in Neurofibromatosis at UF HEALTH provides comprehensive and exceptional care for patients and families affected with NF. We are designated clinic as a member of the NFCN ( Neurofibromatosis Clinical network). We are also members of the NF Foundation and Network.

Mission of the Neurofibromatosis Center

Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.

NF Brain scan

What is a Neurocutaneous Syndrome?

A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.

nf brain scan 2

About US

Pediatric Care Team

Contact: Sridharan Gururangan, FRCP, Edin.

Pediatric Hospital Main

neurofibromatosis Clinical Trials

The Neurofibromatosis Center at UF  is now a member of NFCN network.

Map of Neuromedicine Hospital

To Download our Brochure Click here!

Get Information on the ReNeu NF1 Plexiform Neurofibroma Clinical Trial

Neurofibromatosis News and ANNOUNCEMENTS

Save the Date!

Dr. Phioanh Leia Nghiemphu, an Associate Professor of Clinical Neurology in the Department of Neurology at UCLA, will speak on August 8th at UF…

Phioanh Leia Nghiemphu

Michael Wong, MD, PhD, to speak at Grand Rounds

The TSC center at UF Health is delighted to have Dr. Michael Wong MD Ph.D. – Director of TSC center at Washington University St. Louis,. as an…

Michael Wong, MD, PhD

Translating Science to Transform Clinical…

Gain expert insights for incorporating MEK inhibitors as a part of treatment plans for managing patients with NF1-related plexiform neurofibromas…

nfconference

Informative Videos

What is Neurofibromatosis?

Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.

Image from Video

Guidelines for NF1 Patients

Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.

Image from video of Dr. Yohay

CCAB Virtual Case Conference

The Children’s Tumor Foundation Clinical Care Advisory Board Virtual Case Conferences.

Children's TumorFoundation Logo

Helpful Links

Children’s Tumor Foundation

Neurofibromatosis Consortium