The Center for Excellence in Care in Neurofibromatosis at UF HEALTH provides comprehensive and exceptional care for patients and families affected with NF. We are designated clinic as a member of the NFCN ( Neurofibromatosis Clinical network). We are also members of the NF Foundation and Network.
Neurofibromatosis (NF) is a set of complex genetic disorders that can affect almost every organ system, causing a predisposition for tumors to grow on nerves in the brain and throughout the body.
A broad term for a group of neurologic (NEURO – brain, spine, and peripheral nerve) disorders that involve other parts of the body, and prominently the skin (CUTANEOUS). These diseases are lifelong conditions that affect the nervous system and other organ systems, and require comprehensive evaluation and follow up by expert physicians.
Contact: Hans Shuhaiber, MD
Contact: Sridharan Gururangan, FRCP, Edin.
neurofibromatosis Clinical Trials
The Neurofibromatosis Center at UF is now a member of NFCN network.
Neurofibromatosis News and ANNOUNCEMENTS
Dr. Phioanh Leia Nghiemphu, an Associate Professor of Clinical Neurology in the Department of Neurology at UCLA, will speak on August 8th at UF…
The TSC center at UF Health is delighted to have Dr. Michael Wong MD Ph.D. – Director of TSC center at Washington University St. Louis,. as an…
Gain expert insights for incorporating MEK inhibitors as a part of treatment plans for managing patients with NF1-related plexiform neurofibromas…
Neurofibromatosis Type 1 (NF1) is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntingtons Disease combined.
Pediatric neurologist, Kaleb Yohay, MD, and director of NYU Langone’s Comprehensive Neurofibromatosis Center discusses NF 1 Guidelines for Adult patients.
The Children’s Tumor Foundation Clinical Care Advisory Board Virtual Case Conferences.