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NF Clinic

Advances in Neurofibromatosis: Integrating Multi-modality Therapy

Live Virtual CME Experience Friday, October 9, 2020 (8:45 am-4:15 pm) This live virtual conference is intended to provide an update on current evaluation and multi-modality therapy for neurofibromatosis. Neurofibromatosis represents a group of inheritable disorders that require multi-disciplinary integrated care. Major advances in defining molecular alterations and…

Join us for a Virtual Event!

Overview of Neurofibromatosis Type 1 Plexiform Neurofibroma Speaker: Dr. Mislen Bauer Director, Neurofibromatosis Program Clinical Genetics & Metabolism Nicklaus Children’s Hospital, Miami FL Date: June 12, 2020 12:00 – 1:00 pm EDT To register please click here!…

Virtual NF Conference – June 15-16!

Please join us for the upcoming virtual NF conference brought to you by the Children’s Tumor Foundation – June 15-16, 2020! The conference kicks off at 9:45 ET Monday with a welcome from our co-chairs and opening remarks from Dr. Francis Collins of the NIH. The Clinical Care Advisory Board…

Understanding NF2

Use this link to download a copy of NF Hero Comics – Understanding NF2.  This is a resource from the Children’s Tumor Foundation – Ending NF through Research.  …

Speaker Announcement – Sepideh Mokhtari, MD

Tuesday January 7,  2020 12 pm- 1 pm Invited Neurology Grand Rounds Speaker Sepideh Mokhtari MD   Neuro-oncological Aspects of Neurofibromatosis Location: McKnight Brain Institute, DeWeese Auditorium, LG-101   Dr. Sepideh Mokhtari is an Assistant Member in the Department of Neuro-Oncology at Moffitt Cancer Center. Dr. Mokhtari received her…

Care of adults with neurofibromatosis type 1

Neurofibromatosis type 1 (NF1) is an autosomal dominant tumor-predisposition disorder that arises from loss-of function variants in the tumor-suppressor gene NF11,2. Features of the disorder typically appear in early childhood. Download article now…

Breakthrough News…

New Study reveals treatment pathway for Neurofibromatosis Now, a national team of researchers including  James Wymer, M.D., Ph.D., a UF professor of neurology and director of the neuromuscular division, has identified a novel pathway for potential treatment of this distressing condition, which typically is diagnosed in childhood or early adulthood.